CFF VLC 2022

Jul 22, 2022 ‐ Jul 23, 2022


Volunteers in Action Luncheon iconVolunteers in Action Luncheon

Preview Available

Volunteers in Action Luncheon

Jul 24, 2022 11:10am ‐ Jul 24, 2022 12:10pm

Identification: 30

The VLC Volunteers in Action Luncheon is a moment of recognition and celebration of the amazing volunteers that move the Foundation forward. From standout speakers, powerful stories, and award presentations, this is a can’t-miss session that will have you up and out of your seat cheering for your fellow volunteer leaders!

  • Mike Beatty, Esq., Chair, National Volunteer Leadership Council
  • Robert J. Beall, Phd, Former President and CEO, Cystic Fibrosis Foundation
  • Harris Markowitz, Chair of National Tomorrow’s Leaders Council, Senior Vice President at Clarion Partners
  • Leila White, Georgia Chapter Vice Chair and National Tomorrow's Leaders Council Member
  • Richelle Meiss, National Tomorrow’s Leaders Council Member, Actor and Writer

Infection Research Initiative Update

Jul 24, 2022 12:30pm ‐ Jul 24, 2022 1:30pm

Identification: 32

Join us to hear an update on the progress of the CF Foundation’s Infection Research Initiative since its launch in 2019 and learn where the strategic vision is headed in the future. You will also learn more about the therapeutic development industry portfolio and exciting happenings in both clinical and basic research areas.

  • Dara Riva, MS, Director of Clinical Research Awards, Cystic Fibrosis Foundation
  • Tiffany Burnett, Senior Director, Biopharma Programs, Cystic Fibrosis Foundation

Navigating the Path: Approaches and Progress Toward Genetic Therapies for CF

Jul 24, 2022 12:30pm ‐ Jul 24, 2022 1:30pm

Identification: 33

Understand the basic biology behind cystic fibrosis and the approaches to treat the underlying cause of the disease – mutations in the CF transmembrane regulator (CFTR) gene. Learn how mutations in different parts of the gene result in diverse protein defects, and in some cases complete loss of CFTR protein. This session will also break down the most common approaches for genetic therapies, which aim to restore functional CFTR expression by delivering RNA, DNA, or DNA editing machinery. If successful, these therapies could benefit all people with CF, including those with rare or nonsense mutations. To close the session, you will hear about the challenge of packaging and delivering genetic therapies for CF and learn how the Foundation is working to overcome this hurdle.

  • Kara Foshay, PhD, Director of Biopharma and Medicine Programs, Cystic Fibrosis Foundation
  • John Sheridan, PhD, Ongoing Research Director, Cystic Fibrosis Foundation

Mental Health: Learning. Planning. Funding.

Jul 24, 2022 12:30pm ‐ Jul 24, 2022 1:30pm

Identification: 34

During this session, you will learn about the ways the CF Foundation invests in ongoing education and support to optimize mental health and emotional wellness services for people with CF – a key priority outlined in the Foundation’s strategic plan.


Advanced Lung Disease and Lung Transplantation: Why It Still Matters

Jul 24, 2022 12:30pm ‐ Jul 24, 2022 1:30pm

Identification: 35

Learn about the Foundation's efforts to improve the lives of people with advanced CF lung disease, those considering whether or not to have a lung transplant, and those who have already had a lung transplant. Our advanced lung disease program is a part of our commitment to meet the needs of all people with CF and to leave no one behind in the search for a cure.

  • Erin Tallarico, RN, BSN, Lung Transplant Initiative Director, Cystic Fibrosis Foundation
  • Albert Faro, MD, Senior Director, Clinical Affairs, Cystic Fibrosis Foundation

Until CF Stands for Cure Found iconUntil CF Stands for Cure Found

Preview Available

Until CF Stands for Cure Found

Jul 24, 2022 1:40pm ‐ Jul 24, 2022 2:00pm

Identification: 37

Molly Riley, vice president of field management and volunteer and donor engagement, and our co-chairs, Julie Riedy and Ray Poole, will close out the 2022 Volunteer Leadership Conference.

  • Molly Riley, Vice President of Field Management and Volunteer & Donor Relations, Cystic Fibrosis Foundation
  • Ray Poole, 2022 Volunteer Leadership Conference Co-Chair
  • Julie Riedy, 2022 Volunteer Leadership Conference Co-Chair